Tag Archives: disability

26 April: None but the brave, 2.

Image result for road signs old people crossing

Of course yesterday’s tale turns out to be a bit more complicated than that, but there is some reassurance in the unfolding story.

Twice more I saw Mrs K in Station Road, once on the arm of a young man, the other escorted by a young woman who was just settling her into her chair as I entered the shop; I had the impression that this was not the first time she’d performed this service. Mrs K once again got her shopping list out, written on a tiny sheet torn from a spiral note pad. A different assistant began quartering the aisles and was soon finding her groceries, while the security man walked across to greet her.

Once again, thank you to the staff of our little local supermarket!

Then a couple of weeks after writing yesterday’s post, I was chatting to a neighbour who is an Anglican, and he asked me what I knew about Jane from our church: was she safe? Jane – with the little dog? I knew that she was ill indoors. Not that Jane – he described Mrs K in a few words and a gesture. ‘I always call her Mrs K, I said, seeing her as the generation before me, and to be addressed formally till asked to do otherwise.’

Neighbour Nick had gone home with her, seen that she was up two flights of stairs, nowhere to keep a walking trolley, no way she could get it upstairs, what did the church know about it?

Plenty, as it happened; I was told by another old lady that Mrs K is fiercely independent, gets a taxi to Mass, attends a few meetings, is in regular contact with her two children and has no intention of moving, thank you all very much indeed.

She is clean, rational (except about her personal safety, perhaps) and feeds herself, is no doubt the despair of her daughters, but living her life and faith as she chooses. Deprived of her own home unnecessarily she would not be happy. It’s not time for that yet.

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25 April: None but the brave.

Image result for road signs old people crossing

Often and often I’d seen her, on the opposite side of the road, making for the little supermarket, walking stick in hand, eyes fixed ten yards in front of her, seemingly intent on the journey rather than the goal. It would not have been appropriate to call out a greeting, and I was not at all sure she would remember me from church.

Today a man was talking to her as I drew abreast, but she seemed to be dismissing him. But no sooner had he gone his way than she seemed to be staggering. I crossed and greeted her by name: ‘Mrs K, you seem to be in difficulty.’ Enough to win her confidence, she took my arm and we made a somewhat erratic progress to the shop. ‘I always get a taxi back.’

No sooner were we through the door than an assistant had scooped her away and into a chair. Mrs K got her shopping list out and the young woman was soon finding her groceries, and no doubt arranged for the taxi to come and take her to her door.

Let us be grateful that shops can still be human-friendly and serve with a smile; thank you Flavia! But I also want to salute the sheer bravery of Mrs K, stepping out on a cold morning, facing the danger of falling or losing the energy to make it to the shop (and then what?)

There are many people living with disability or weakness who nonetheless are witnesses to life and indeed to something beyond earthly life. Keeping going, day after day, can be disheartening, and if there is nothing to look forward to, then why bother?

But, we are Easter People. At the end of John’s Gospel we read how Peter saith to Jesus: Lord, and what shall this man do? Jesus saith to him: So I will have him to remain till I come, what is it to thee? follow thou me. (John 21:20-21) Jesus and Peter were talking about John, the beloved disciple, but his words apply to most of us Christians today: we are called, not to martyrdom, but to remain until he comes, watching like the wise bridesmaids, and to follow him to the wedding feast whenever he calls us.

 

 

 

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31 March, Desert XXXIII: It’s good to be here.

Christina has kindly allowed us to use an extract from her book, which we thoroughly recommend; find it on Amazon or through the publisher’s link below. But for now, take a step into her personal desert.

The yearly losses of strength and abilities – lifting up my arms, feeding myself, brushing my own teeth, breathing without labour – these are the hardest things to bear … The circumstances of my life altered my childhood, undermined my teenage years, and rendered me into an adult who is completely dependent upon others for everyday survival. My body has been wracked with the pain of angry weeping, my bones crying out with shuddering grief, and my mind seized with the heartache of my life. And yet …

I am not bitter.

I pine for independence, for a family of my own, and I mourn the physical losses, the sickness, the shortened lifespan. And yet … I am very glad to be here.

Why am I glad? I ask myself. Even I wonder at how I can be the generally content, grateful and joyful person that I am. Over and over I have asked myself why I, cripple that I am, continue to have a deep love for life.

Why?

Because I am fearfully and wonderfully made.*

* See Psalm 139:14.

Christina Chase, It’s Good to be here, Sophia Institute Press, 2019, pp6-7.
https://www.sophiainstitute.com/products/item/its-good-to-be-here – to order the book from the publisher.

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March 29: “Not my will”, Desert XXX.

 Christina Chase has kindly allowed us to share her recent post, ‘Agony’. After reading these opening paragraphs please follow the link to her blog. Christina would have written especially for us this Lent, but she has been busy with her new book, ‘It’s good to be here’, which is available via Amazon or from the publishers, Sophia Institute of New Hampshire. This photograph shows her before the crucifix in her room, taken by her father, Dan Chase.

How many times have I desperately longed for my life of progressive disability to be different? For countless hours upon hours I have agonized, with teenaged hormones raging, wanting a different path, begging to be released from the nevers of my life, from the crippling confines of my disease. Far too weak and dependent for romantic relationships, I deeply desired the possibility of a husband, of children, of a home of my own, painfully frustrated and sad that it could not be.

In sleepless nights even now, I suffer the agony of simply wanting to swing my legs down from the bed and stand up. I don’t want to be dependent upon my aging parents and wake them in the middle of the night for my comfort, no matter how willing they may be to assist me. So I lie still in the dark as my tears sting and burn my eyes, and I can’t wipe them away with my own hands.

I don’t want my disability, this difficult burden of sorrow and painful loss — I don’t want disease to lay upon me and upon the backs and hearts of the people whom I love.

Follow the link to read the rest of Christina’s post and more about her book.

https://authorchristinachase.com/2020/03/06/agony/

Sophia Instiutte Link:

https://www.sophiainstitute.com/products/item/its-good-to-be-here

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9 January, Book Review: My book for Lent 2020, ‘It’s good to be here’.

christina cover.jpg

It’s Good To Be Here by Christina Chase

Review by Maurice Billingsley

Regular readers will remember the thought-provoking posts that our friend Christina Chase has allowed us to share from her own blog, which you can visit from the link. You will understand how I had been waiting to see this book, and I was by no means disappointed on reading it. Christina weaves autobiography and a profound incarnational theology with a love of language and clarity of expression. This will be my Lent book for 2020.

We were led, in my pre-Vatican II childhood, to look upon Jesus as the perfect human being: ‘Little children all must be / Mild, obedient, good as he.’ Our teachers apparently forgot that it was at his Transfiguration that the Apostles saw something more and Peter said, ‘It’s good to be here.’

There are those who would contradict Chase’s assertion that it is good for her to be here, since she is profoundly disabled – she readily uses the non-PC term ‘crippled’ – with a wasting disease that ought to have killed her years ago, and that renders her unable to feed, dress, or care for herself, depending on others for such needs.

But Christina has undergone her own transfiguration; this is her story. She had no need of a Franciscan stigmata, the wounded body was hers from birth, but she has had to come to terms with the human condition in her own self, with all the frustrations writ large. And so she can write: ‘The one astonishing fact of life is that suffering, like disease, war, murder, and abuse, cannot destroy the gift that God Almighty gives, because real love never fails.’ (p18) It’s good to be here; to be human here, as Christ was. After his Baptism, ‘He stood, rising to inhale deeply and shake the dripping wetness out of his hair and off of his drenched body.’ (p38)

And this from a woman who frequently finds breathing difficult, who cannot shake her head to dry her hair! This is not a book to buy out of pity for a ‘poor, disabled woman’, but for its deep insights into the divine light that wills to brighten our days. All our days. Christina’s vision is eternal: ‘What will life be like then?’ (p124) The glimmer of an answer is to be found in our earthly, earthy lives: it’s good to be here, breathing, getting wet, enjoying the sacrament of everyday in the wondrous life God has given us.

This will be my Lent book for 2020.

You can order it now from the publisher, Sophia Institute of New Hampshire, or  their UK agents, Gracewing, or via Amazon .

 

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17 October: Being practical about Mission

L'arche procession1

L’Arche is a worldwide federation of people, with and without learning disabilities, working together for a world where all belong.

This photo was taken in Canterbury Cathedral when L’Arche Kent was celebrating 40 years of life, and L’Arche itself was marking its half century. Making enough space for everyone is vital and the process is on-going. A world where all belong is a challenge: L’Arche lives that challenge, and in doing so witnesses that it is possible.

To remain faithful to the mission the structures of each community, and the federations which link them, are reviewed regularly to give a new mandate for community life. Here are some points from L’Arche UK’s new mandate.

L’ARCHE UK MANDATE July 2019 – July 2025
Partners in Mission, building a more human society

1. Building unity around our Mission
The greatest insight that L’Arche has to offer arises from our emphasis on community and mutually transforming relationships. Therefore we will:
 Create and celebrate new ways to live out our Mission in response to a 21st century call for L’Arche in the UK.
 Partner other organisations to impact on the social and political concerns of wider society and be a beacon for the learning disability sector.
 Deepen our connection to our founding Christian tradition and live out the spirituality of L’Arche more confidently. This spirituality embraces people of all faiths and none and all who are aligned with our Mission.
 Vigorously pursue the four dimensions of community, spirituality, service and outreach through our service to society and through service provision.
2. Partners in the Mission
People with and without learning disabilities are together partners in the Mission. A vital
element in this partnership on the national level is the National Speaking Council. Therefore we will:
 Strengthen the purpose and voice of the National Speaking Council with proper
resources.
 Offer people with learning disabilities opportunities to impact more powerfully on our society through employment and quality day services.
 Become experts in accessible communication, both locally within our communities and nationally.
 Ensure that people with and without learning disabilities engage in outreach together.
3. Resourcing the Mission
We need to be well resourced for the journey. Therefore we will:
 Agree and implement a model of effective governance that truly serves our Mission by ensuring business and financial viability.
 Work towards greater Mission sustainability by increasing our fundraising capability and reviewing our financial management.
 Develop our culture so that all our communities are competent and effective in the four dimensions.
Find out more about L’Arche and its mission here:

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12 October, Month of Mission: A worthless servant in Algeria.

taize algeria

Another visit to Algeria and a taste of a prophetic mission.

My name is Vincent Somboro. I am a Malian, a dogon from the Diocese of Mopti, right in the centre of West Africa, and I am preparing to be a Missionary of Africa. After studying Philosophy for 3 years in Burkina Faso, then completing my novitiate year in Zambia, I was appointed to a community of Missionaries of Africa in Ghardaia, Algeria, for a two year lived-experience of Mission. I have been here for one year now. Algeria is a Muslim country and religion is absolutely central to its daily life. I count myself very lucky to be working amongst a people for whom God and religion are still so important. As Christians here, our life is one of discreet dialogue. It can happen that I talk with certain people about religion, but this would only be with people who want to convert me to Islam. I build my life as a Christian on Our Lord’s words, “whatever you do to one of these little ones, you do to me!” and still I remain “a worthless servant who is only doing his duty.”

I live this life in different places. In a library; in a centre for handicapped children; in meeting migrants and anyone else the Lord puts in my path. In the library: as well as being the librarian in charge of books, I give extra help to both children and adults who are learning English or French. It is really the only place where I can meet Algerians: coming into contact with Algerian society in a more informal way.

Once a week I play sports with the children in a centre for the handicapped. This simple interaction, being with the children, with no agenda other than being there with them, brings me great pleasure.

Being a Malian, an African, is also a great advantage when it comes to contact with migrants. Meeting migrants affords me a marvellous opportunity to serve my African brothers and sisters. This is a challenge which preoccupies me greatly, and it is doubly useful: in the context of Algeria, I am able to be both a missionary and a prophet.

I am a missionary because the migrants really feel at home when they come to our house. A confrere and I, between us, speak Moore, Hausa and Bambara. This covers most of West Africa. As fellow Africans, we are living the same reality in Algeria as they are.

I am a prophet because, as an African, I yearn for our home countries to come up with structures to help our young people, helping them struggle against famine and war, and against the desire driving our youth to get to Europe no matter the cost. I feel troubled and challenged when I see young people crossing deserts to get to Algeria, hoping to cross the seas to Italy and Spain. I see the religious and cultural divides, the injustice and the racism that they encounter. I thank God for my experience here.

Vincent Somboro.

From the White Fathers Magazine, February 2017.

Taizé celebration in Tlemcen

https://www.missionariesofafrica.org.uk/

 

 

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July 8, Readings from Mary Webb XVII. Good-Bye To Morning

speedwell
Mary Webb’s girlhood, as we read yesterday, was a magical time, spent largely out of doors. In adulthood her hyperthyroidism caused her much suffering and brought abut her early death at 47. Here she faces that eventuality.
I will say good-bye to morning, with her eyes
Of gold, her shell-pale robe and crocus-crown.
Once her green veils enmeshed me, following down
The dewy hills of heaven: with young surprise
The daisies eyed me, and the pointed leaves
Came swiftly in green fire to meet the sun:
The elves from every hollow, one by one,
Laughed shrilly. But the wind of evening grieves
In the changing wood. Like people sad and old,
The white-lashed daisies sleep, and on my sight
Looms my new sombre comrade, ancient night.
His eyes dream dark on death; all stark and cold
His fingers, and on his wild forehead gleams
My morning wreath of withered and frozen dreams.

darkevening

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28 June: Bernadette and the Sacraments.

Bernadette Soubirous.jpg

Let’s continue talking about the Eucharist. I was reading about Saint Bernadette, the young girl who saw ‘la bonne Mère’ – the good mother – in the little grotto by the river in Lourdes, France, in 1858. This reflection  is not about those apparitions, nor the shrine that has grown up there, but about something we can take for granted: the opportunity to take a full part in the Eucharist, not just by being present at Mass but by receiving the Sacrament that unites us in Christ’s body and blood.

Bernadette grew up speaking the local dialect and playing a full part in the family’s economy, working as a shepherd, running errands for neighbours, to earn money to put bread on the table. She left school early to do so, and never learnt French which was the language of the catechism she had to absorb to be allowed to receive Communion. Yet in her heart she understood as well as anyone what the Eucharist meant. Eventually she was taken into a boarding school as a poor scholar, mastered French and received the Sacrament with joy.

Image result for streicher ugandaThis is Henri Streicher, a Missionary of Africa who became Bishop of Uganda from 1897 to 1933. He and his Anglican counterpart, Bishop Tucker – acting more as rivals than fellow workers, it has to be said – made it a priority to translate the Bible and catechisms into the local languages and to print these texts so that all could read them. They also made sure that there were basic schools in the villages where young and old could learn to read and write, which they were very keen to do.

During the 1980s, helped by an impetus from the UN Year of Disabled People in 1981, a great effort was made to make all aspects of Church life, including the Sacraments, available to disabled people. Away with ‘he cannot understand’, or ‘she’s innocent, she doesn’t need the Sacraments’. The Sacraments are for all.

New ways of presenting the Faith came into being. We looked more at the fellowship of believers, not just individual sin and salvation. L’Arche communities are one expression of this inclusive attitude.

The UN’s reflection on the year states:

A major lesson of the Year was that the image of persons with disabilities depends to an important extent on social attitudes; these were a major barrier to the realization of the goal of full participation and equality in society by persons with disabilities.

This was true in the Church as well. I know that more can and should be done, but let us rejoice that few people now will be refused the Sacraments on grounds of disability. We should make sure to welcome all, as Jesus did.

Saint Bernadette as a child, public domain, via Wikipedia

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9 May: Jean Vanier: a welcome for all.

jean.v.letter

As our friend and contributor Rupert Greville says, ‘there’ll be a great deal of reflection to read over the coming days on Jean Vanier’s life and work.’ Here is a short memory from Laurent de Cherisey, founder of the Fondation Simon de Cyrene, which develops and animates shared homes on a human scale. These welcome abled bodied people and those who have become disabled during the course of their lives. He shared a platform as a speaker with Jean and they co-wrote a book,  “Tous intouchables ?” (All of them Untouchable?) with Philippe Pozzo di Borgo.

He challenged us to live fraternally, as brother and sister with the most fragile, to go beyond our private fears and build a world that welcomes everyone. He was one of those prophets who bear witness to a possible way forward for humanity, at a time when it shows itself to be extremely disturbed and anxious about living with one’s neighbour.

On the contrary, the experience of Jean Vanier and L’Arche demonstrates that when we pull down the ‘walls of fear’, as he called them, we can become co-creators of that common home where there is a fulfilling place for each one of us. 

From La Croix Newspaper

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